Follow by Email

Wednesday, June 21, 2017

MS Week

Good Night

Hope you all well!

So how does a not good MS week feel for me as we all different

Just in summary:

  • Started with headaches and not sure if from MS or Aubagio 
  • Losing almost all feeling in left leg and arm partially
  • Having challenges seeing through the blurs in my eyes
  • And pyn well made up on my Stillpaine tablets between 6 and 10 a day
  • On positive spend time with Kids
  • Worked on company profile and so
  • In proses of starting NPO .... watch the space...
  • New branding of Hadders Pty Ltd thanks to Poffit
So in general had a good week but it is difficult to explain to people what is like to loose control of body, mind that has never been the britest so that ok to have a brain freeze now and then.

Please don't see this as complaining about life with MS we have to make it fun. 

I am surrounded by friends Family and loved ones that really care and it is small things that make life great.

Like lunch with my Daugther Attorney and myself and just being abble to chat about life we have.

Letting cars be washed with son and daugther and enjoying plate off chips.

Thanks agin for all the support.

Keep S'Myelin

Saturday, June 10, 2017

Day 4 on Aubagio

good evening

As I finish off day four with Aubagio  I am thankful that I do not have any side-effects. Happy and positive looking forward to the treatment.

I must try that during these days it is made me think of what I'm thankful for.

Today has been a physical day where attending a site meeting and needed to be on my feet for a long period of time. This did create some uncomfortable  feelings in my back and legs, I am also to blame as I did not wear my support care for my legs and feet. I know that it is difficult for myself to agree that I do need to wear  my support gear. I think it is a matter of proudness or stupidity.

  So after today I can personally say that the treatment will be positive.

These past days have made me think about some of my old writings:


With this i look fotward to the next days, weeks months.

Thanks all

Keep S'Myelin

Wednesday, June 7, 2017

Aubagio The Start

The start of Aubagio

So Today 7 June 2017 I have taken my first Aubagio tablet!

So still very nervous/ anxious/ positive with not knowing what to expect .

This is what it looks like:

So Now we monitor my change in life style and Potential Side Effects.

But as Always

Keep S'Myelin

Monday, June 5, 2017

Change in Journey

 Over the next few days I will be re-focusing my journey on taking new medication.

During this journey I will be taking Aubagio  on a daily basis. Currently I am extremely nervous/anxious as I'm not exactly sure what to expect.

I'm using my iPad with voice to text to do the Blog.

The journey to getting permission from medical aid for the treatment has been a extremely long and exhausting exercise. with the support of family friends and MSSA we are on the brink of the new treatment.

I will be using the Internet and social media to give a journal  of my treatment. Personally I am very positive that the journey we are taking now will have a long-term positive affect.

I am hoping that the start of the new journey will add value to other Multiple Sclerosis.

Let us Keep S'Myelin.