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Friday, November 29, 2019

So we live to Learn


Hi There

This has been a very quite time for me Personally, had to go and find myself.

In short so from losing Both Parents, falling in and out of thing called LOVE, turning at the deepest point in my MS journey ....

But now we start a fresh and again realized how blessed I am with all my opportunities to change to a better person (my view as I can say that)

Thanks to all my family, friends and loved ones for making my journey the best it can be and building new Memories.

Wednesday, June 21, 2017

MS Week

Good Night

Hope you all well!

So how does a not good MS week feel for me as we all different

Just in summary:

  • Started with headaches and not sure if from MS or Aubagio 
  • Losing almost all feeling in left leg and arm partially
  • Having challenges seeing through the blurs in my eyes
  • And pyn well made up on my Stillpaine tablets between 6 and 10 a day
  • On positive spend time with Kids
  • Worked on company profile and so
  • In proses of starting NPO .... watch the space...
  • New branding of Hadders Pty Ltd thanks to Poffit
So in general had a good week but it is difficult to explain to people what is like to loose control of body, mind that has never been the britest so that ok to have a brain freeze now and then.

Please don't see this as complaining about life with MS we have to make it fun. 

I am surrounded by friends Family and loved ones that really care and it is small things that make life great.

Like lunch with my Daugther Attorney and myself and just being abble to chat about life we have.

Letting cars be washed with son and daugther and enjoying plate off chips.

Thanks agin for all the support.

Keep S'Myelin

Saturday, June 10, 2017

Day 4 on Aubagio

good evening

As I finish off day four with Aubagio  I am thankful that I do not have any side-effects. Happy and positive looking forward to the treatment.

I must try that during these days it is made me think of what I'm thankful for.

Today has been a physical day where attending a site meeting and needed to be on my feet for a long period of time. This did create some uncomfortable  feelings in my back and legs, I am also to blame as I did not wear my support care for my legs and feet. I know that it is difficult for myself to agree that I do need to wear  my support gear. I think it is a matter of proudness or stupidity.

  So after today I can personally say that the treatment will be positive.

These past days have made me think about some of my old writings:


With this i look fotward to the next days, weeks months.

Thanks all

Keep S'Myelin

Wednesday, June 7, 2017

Aubagio The Start

The start of Aubagio

So Today 7 June 2017 I have taken my first Aubagio tablet!

So still very nervous/ anxious/ positive with not knowing what to expect .

This is what it looks like:

So Now we monitor my change in life style and Potential Side Effects.

But as Always

Keep S'Myelin

Monday, June 5, 2017

Change in Journey

 Over the next few days I will be re-focusing my journey on taking new medication.

During this journey I will be taking Aubagio  on a daily basis. Currently I am extremely nervous/anxious as I'm not exactly sure what to expect.

I'm using my iPad with voice to text to do the Blog.

The journey to getting permission from medical aid for the treatment has been a extremely long and exhausting exercise. with the support of family friends and MSSA we are on the brink of the new treatment.

I will be using the Internet and social media to give a journal  of my treatment. Personally I am very positive that the journey we are taking now will have a long-term positive affect.

I am hoping that the start of the new journey will add value to other Multiple Sclerosis.

Let us Keep S'Myelin.

Thursday, September 12, 2013

New Phase

Hi there all buddies I have been somewhat quite for reasons I needed to be. I have just launched the next phase of my journey please register and continue my blog and the "Enriching Life's" program
Thanks for the support please Register to follow blog on new site.

Sunday, August 4, 2013

The Puzzle of Life

Good day all thanks again for the support all.... I have taken some time off but I am back.

So during the past week I was again brought back to reality and started looking at my own personal life and what has happened. this created various emotions:

  • Anger
  • Sorrow
  • Happiness
  • Sadness
  • Upset
  • Nervous
  • Stressed
  • Contentment
With all of this running in my head I was not sure how to look at this. But I started the process as I do. All the “W” questions:

  • Who is it about?
  • What happened?
  • When did it take place?
  • Where did it take place?
  • Why did it happen?

And the other question:
  • How did it happen?
With this running in my head I started to gather information and information, but also forgetting information as we with MS do. So I continued working with all this information for days and weeks on end and realizing I was going nowhere.

Then I realised that the information was creating my own Puzzle of life my experiences, my pain, my joy, my anger, my happiness.

Then I started building my puzzle, as I do it is easy to put the pieces that are already joined down. When that was done I started the outside border. But this created a huge battle as I could not get the border worked out, so after a while of battling with the borders I decided I need to just stand back and have a look at what is going on. 

And then it struck me there is not one puzzle, I have a number of Puzzle's that I need to complete, one for each phase or process or what we what to call it of our Life journey.

And so I started the puzzle building of my life. This is the most interesting puzzling I have done as I could work on more the one puzzle at a time. It was also interesting to see that some of these puzzles are actually interlinked with each other.

Then there was the realisation that some of the pieces of these puzzles where missing and I need to go and look for them. I did find some but I Realised that as my journey continues I will be getting those pieces that are missing.

Now looking at the Puzzle I see so much more but I also still see that I have piece missing but the best and exiting part is that there is a pile of pieces left one side that will create a new puzzle or a new Dimension to my Journey of Life. 

So let us all build our Puzzles and enjoy them!

“It's often just enough to be with someone. I don't need to touch them. Not even talk. A feeling passes between you both. You're not alone.”

― Marilyn Monroe