Preperation

 Good evening all.

So for years I have learned to prepare for the expected and unexpected in everyday life in my Journey. 

So the past weeks I have been preparing again to go for my six monthly drips.. and then there was a glimmer of hope that I could go on the new and greatest medicine, but like all ofer world medical aids has a different time line. But I am fine with this as I know my time will come when it is the right time.

But I have learned again that I would rather focus on my blessings be thankful for the great stuff happening around me. 

Over the past weeks been some fun MS battles from being bed ridden for 4 weeks and a week in hospital. But as I have learned my body needed it.

But in the bigger picture life is great and a blessing. 

Have also had some fun and created MS awareness as below.

https://www.facebook.com/1790232397/posts/pfbid02tv1R3Coi3UeePqhdn1XNgyPMq6Z3mdo6zXTBmWKMAFEUvnjeFJ3JWX5hCYgEACcUl/?

https://glanslewe.blogspot.com/2024/02/veelvuldige-sklerose-veterane-verf-die.html

And these days are the days that take us forward.

Let us look forward and Keep S’Myelin

The Grains of sand

 As I live me life I come to realise we are more like the grains of sand in a desert. Each grain has iets place and needs to move as the wind and water and earth needs it to be and go. A grain can fight the wind the water but ultimately it will end in the place where it is needed. 

Looking over a desert and reading the terrible news of the flooding in Libya we need to just try to support the people in need. People are being moved by mother nature in an terrible and tragic way, The lives lost and families destroyed and damaged caused we can not imagine. My heart goes out to all people that are suffering during these times.

 It brings back my personal experience of the heartache the was caused by the Arib Spring some years ago, one the act of nature and other the act of the human kind.

Both started with a small grain of sand that shifted and changed the lives of so many people.

We need to respect the grain we are and what we doing to people around us… the question is it for the good to the people around you. Think hard before you start a grain rolling.

Please let us all be the best person we must be.

 

So all starts falling in place

 Years ago when I started my journey on blogging… most of them in dark corners in hospitals.. just to have some peace of mind .

I personally never thought I / we would be where we are know… the then a dream of a book is now reality although only Ebooks as yet. But in discussion with the printing side.. then a new story. 

To have a book out in less then a month and have reached global exposure via online friends from US to europa, Australia, Asia, Africa. 

Then all the media exposure is exceptional.  But this thanks to a PR team making it happen.. 

It also started stimulating my brain on Blogging again.

And today again aligning with a team of  professional our web presence is out there… and it will grow. 

www.smyelin.co.za

I would like to just share two youtube video’s not may own please see people that did them it just speaks to the the our Book Just keep S’Myelin line that positivity is a blessing and a help no matter what your situation. 

https://youtu.be/ura03MbXZKI

https://youtu.be/pXWihqmEjO0

Protect Hearts while brain breaks down Body.

 Good day

Let me start with a small disclaimer.

Please note what ever I put in this blog is from my heart based on some facts but names and places have been changed to protect the not so innocent.

I want to start by thanking friends, family and loved ones that have over the past 11 years supported and carried me. 

Once again this weekend was so cool to meet new people that just don't judge.

The story today is a short but relevant story maybe to more people then we think.

So after my diagnosis of MS I was confused, scared, uncertain....... This then made me take some decisions for myself but also for people in my life.

So we all know the story of the Heart and the Brain in your body, personally there as been numerous times where I asked myself do you make a Heart decision or a Brain Decision. Funny most of the times these decisions are polar opposites to each other.

So what do you do to protect Hearts.. My own and people Around me. 

So we PWMS (People with MS) types have this big challenge that our Brain is gradually breaking down our body. Losing feelings in hands, Then Feet, the Eye sight, then... and so we go on. But our Hearts are somehow being protected physically, but that emotional Heart, that Heart that talks about caring, love and support. 

So I needed to make a clear understanding that I would never want to be a burden to anyone specially a loved one. So now we have in my body the brain breaking me down physical... gradually. I have a heart that has a need to reach out to people and loved ones and then the reality... 

So this reality is constantly changing and fighting inside a body that is sometimes in pain, sometimes numb sometimes great. The constant fighting of the heart is a real challenge more then the physical challenges of MS.

So protecting Hearts of people you sometimes need to walk away, have a clear do not enter sign on the heart. So this a view to protect other Hearts not necessary one own heart, but these action sadly sometime leads to heartache to people you care about. 

 “Whatever makes an impression on the heart seems lovely in the eye.” —Sadi

Just Need to return to excepting

 Good day all,

After a long period of silence I am back as it has taken me some time to get myself in the correct mind space.

I still Remember posting the post about Inner Peace and after tests on Monday this was a clear message to myself. I need Inner peace.

In the words of my specialist Gerrie you have been Diagnosed with MS for over 10 years and you will get weaker, things will fall, you will walk into walls and the pain will continue. But I need to decide in my headspace if it will affect me, or change me. 

As we live our lives we as people have a negative outlook at our lives and what we have. After traveling around South Africa and seeing places and meeting people that I never thought of meeting. You have your hours and days of going back in your past.

Starting at the place that I experienced the most sadness, confused as ever before,  uncertainty and the sense of loss. As we were standing next to the grave and looking at the candle burning in the wind,  the words of Sir Elton John Runs through your head Candle in the wind the version that was played for Princess Diana just few weeks after Gerda.

http://www.youtube.com/watch?v=IRL5g9ajgqQ&feature=youtube_gdata_player

Thinking about that time I still remember a good friend of Gerda saying that at least they will both be in good company.

The moment of "MAKE PEACE AND LIVE IN LOVE " Is born!

We as people need to make peace. The death Of a loved one, the loss of loved ones, death of a child, and Severe or terminal illness, we need to make peace to really live in love.

PEACE IS ABOUT
People - Starting with me myself and I
Emotions - Aceptance, Regret and forgiveness
Action - Reaching out and embracing
Commitment - people love, and unconditional love
Energy - Positive Energy

It's in times like these that you become quite and humbled with what we have.
As we live our lives we all get challenged with OPPORTUNITIES. We have the choice what to do with this what we want to . So we can hide it,  we can ignore it or we can work with it. But the choice is our own.  I have learned that the universe will always give us chance to make PEACE with these opportunities. It has taken me years to realise that we need to live in love, as the world can only be a better place if we are surrounded by love.

But love can only be there if you are at total PEACE with yourselve and all that is around you,  the people and the individual challenges.

As a South African I have been given opportunities to learn,  but as I look back I realised that I still need to learn from all the new and old opportunities that I am surrounded with.

So I feel now that I am learning about making peace and Living in love, life is just getting better.

We as people can overcome everything if we have peace in our heart and truly live in love.

So we live to Learn

  

Hi There

This has been a very quite time for me Personally, had to go and find myself.

In short so from losing Both Parents, falling in and out of thing called LOVE, turning at the deepest point in my MS journey ....

But now we start a fresh and again realized how blessed I am with all my opportunities to change to a better person (my view as I can say that)

Thanks to all my family, friends and loved ones for making my journey the best it can be and building new Memories.

MS Week

Good Night

Hope you all well!

So how does a not good MS week feel for me as we all different

Just in summary:

• Started with headaches and not sure if from MS or Aubagio 
• Losing almost all feeling in left leg and arm partially
• Having challenges seeing through the blurs in my eyes
• And pyn well made up on my Stillpaine tablets between 6 and 10 a day
• On positive spend time with Kids
• Worked on company profile and so
• In proses of starting NPO .... watch the space...
• New branding of Hadders Pty Ltd thanks to Poffit

So in general had a good week but it is difficult to explain to people what is like to loose control of body, mind that has never been the britest so that ok to have a brain freeze now and then.

Please don't see this as complaining about life with MS we have to make it fun. 

I am surrounded by friends Family and loved ones that really care and it is small things that make life great.

Like lunch with my Daugther Attorney and myself and just being abble to chat about life we have.

Letting cars be washed with son and daugther and enjoying plate off chips.

Thanks agin for all the support.

Keep S'Myelin