Showing posts with label positivity. Show all posts
Showing posts with label positivity. Show all posts

Tuesday, September 16, 2025

The pink Cloud of Illusion


 The Pink Cloud of Illusion: A Reflection on the Dreaded disease 



There are moments in life when clarity arrives not as a sharp blade, but as a soft mist—rosy, comforting, and dangerously deceptive. The “pink cloud” is one such moment. It drifts in after diagnosis, after the shock, after the tears. It whispers, “You’re strong. You’ve got this. Everything will be okay.” And for a time, we believe it.


But beneath that pastel haze lies the jagged terrain of the dreaded disease—whether it be multiple sclerosis, cancer, or any chronic condition that rewrites the script of one’s life. The pink cloud is not healing. It is illusion. It is the mind’s desperate attempt to reclaim control, to paint over fear with optimism, to turn suffering into a story of triumph before the real battle has begun.


In the early days, the pink cloud feels like grace. Friends rally. Doctors speak in hopeful tones. You read articles about breakthroughs and miracle recoveries. You journal. You meditate. You tell yourself that this disease will not define you. And yet, slowly, reality seeps in. The body does not obey. The fatigue is not poetic. The costs—emotional, financial, relational—pile up like unspoken debts. The pink begins to fade, revealing the grayscale truth beneath.


This illusion is not without purpose. It protects us from drowning in despair. It gives us time to gather strength. But if we cling to it too long, we risk spiritual bypass—we skip the grief, the rage, the reckoning. We become performers in our own recovery, smiling for others while quietly unraveling inside.


To confront the dreaded disease is to walk through the fog, not around it. It is to name the pain, to sit with uncertainty, to mourn the life that was and still find meaning in the life that is. It is to reject the binary of “sick” or “strong,” and embrace the complexity of being both.


And perhaps, in time, the pink cloud returns—not as illusion, but as integration. Not as denial, but as a gentle hue in a broader emotional palette. We learn to live with contradiction. We find beauty in brokenness. We stop asking for certainty and start seeking connection.


The dreaded disease does not define us. But neither does the pink cloud. What defines us is the courage to see through both—and keep walking

Sunday, February 11, 2024

Preperation

 Good evening all.


So for years I have learned to prepare for the expected and unexpected in everyday life in my Journey. 

So the past weeks I have been preparing again to go for my six monthly drips.. and then there was a glimmer of hope that I could go on the new and greatest medicine, but like all ofer world medical aids has a different time line. But I am fine with this as I know my time will come when it is the right time.

But I have learned again that I would rather focus on my blessings be thankful for the great stuff happening around me. 

Over the past weeks been some fun MS battles from being bed ridden for 4 weeks and a week in hospital. But as I have learned my body needed it.

But in the bigger picture life is great and a blessing. 

Have also had some fun and created MS awareness as below.

https://www.facebook.com/1790232397/posts/pfbid02tv1R3Coi3UeePqhdn1XNgyPMq6Z3mdo6zXTBmWKMAFEUvnjeFJ3JWX5hCYgEACcUl/?

https://glanslewe.blogspot.com/2024/02/veelvuldige-sklerose-veterane-verf-die.html

And these days are the days that take us forward.

Let us look forward and Keep S’Myelin

Wednesday, July 5, 2023

So all starts falling in place

 Years ago when I started my journey on blogging… most of them in dark corners in hospitals.. just to have some peace of mind .

I personally never thought I / we would be where we are know… the then a dream of a book is now reality although only Ebooks as yet. But in discussion with the printing side.. then a new story. 

To have a book out in less then a month and have reached global exposure via online friends from US to europa, Australia, Asia, Africa. 

Then all the media exposure is exceptional.  But this thanks to a PR team making it happen.. 

It also started stimulating my brain on Blogging again.

And today again aligning with a team of  professional our web presence is out there… and it will grow. 

www.smyelin.co.za

I would like to just share two youtube video’s not may own please see people that did them it just speaks to the the our Book Just keep S’Myelin line that positivity is a blessing and a help no matter what your situation. 

https://youtu.be/ura03MbXZKI


https://youtu.be/pXWihqmEjO0