Day 4 on Aubagio

good evening

As I finish off day four with Aubagio  I am thankful that I do not have any side-effects. Happy and positive looking forward to the treatment.

I must try that during these days it is made me think of what I'm thankful for.

Today has been a physical day where attending a site meeting and needed to be on my feet for a long period of time. This did create some uncomfortable  feelings in my back and legs, I am also to blame as I did not wear my support care for my legs and feet. I know that it is difficult for myself to agree that I do need to wear  my support gear. I think it is a matter of proudness or stupidity.

  So after today I can personally say that the treatment will be positive.

These past days have made me think about some of my old writings:

Walls

With this i look fotward to the next days, weeks months.

Thanks all

Keep S'Myelin

Aubagio The Start

The start of Aubagio

So Today 7 June 2017 I have taken my first Aubagio tablet!

So still very nervous/ anxious/ positive with not knowing what to expect .

This is what it looks like:

So Now we monitor my change in life style and Potential Side Effects.


But as Always

Keep S'Myelin

Change in Journey

 Over the next few days I will be re-focusing my journey on taking new medication.

During this journey I will be taking Aubagio  on a daily basis. Currently I am extremely nervous/anxious as I'm not exactly sure what to expect.

I'm using my iPad with voice to text to do the Blog.

The journey to getting permission from medical aid for the treatment has been a extremely long and exhausting exercise. with the support of family friends and MSSA we are on the brink of the new treatment.

I will be using the Internet and social media to give a journal  of my treatment. Personally I am very positive that the journey we are taking now will have a long-term positive affect.

I am hoping that the start of the new journey will add value to other Multiple Sclerosis.

Let us Keep S'Myelin.

New Phase

Hi there all buddies I have been somewhat quite for reasons I needed to be. I have just launched the next phase of my journey please register and continue my blog and the "Enriching Life's" program
http://hadders.co.za/
Thanks for the support please Register to follow blog on new site.

The Puzzle of Life

Good day all thanks again for the support all.... I have taken some time off but I am back.

So during the past week I was again brought back to reality and started looking at my own personal life and what has happened. this created various emotions:

• Anger
• Sorrow
• Happiness
• Sadness
• Upset
• Nervous
• Stressed
• Contentment

With all of this running in my head I was not sure how to look at this. But I started the process as I do. All the “W” questions:

• Who is it about?
• What happened?
• When did it take place?
• Where did it take place?
• Why did it happen?

And the other question:

• How did it happen?

With this running in my head I started to gather information and information, but also forgetting information as we with MS do. So I continued working with all this information for days and weeks on end and realizing I was going nowhere.

Then I realised that the information was creating my own Puzzle of life my experiences, my pain, my joy, my anger, my happiness.

Then I started building my puzzle, as I do it is easy to put the pieces that are already joined down. When that was done I started the outside border. But this created a huge battle as I could not get the border worked out, so after a while of battling with the borders I decided I need to just stand back and have a look at what is going on. 

And then it struck me there is not one puzzle, I have a number of Puzzle's that I need to complete, one for each phase or process or what we what to call it of our Life journey.

And so I started the puzzle building of my life. This is the most interesting puzzling I have done as I could work on more the one puzzle at a time. It was also interesting to see that some of these puzzles are actually interlinked with each other.

Then there was the realisation that some of the pieces of these puzzles where missing and I need to go and look for them. I did find some but I Realised that as my journey continues I will be getting those pieces that are missing.

Now looking at the Puzzle I see so much more but I also still see that I have piece missing but the best and exiting part is that there is a pile of pieces left one side that will create a new puzzle or a new Dimension to my Journey of Life. 

So let us all build our Puzzles and enjoy them!

“It's often just enough to be with someone. I don't need to touch them. Not even talk. A feeling passes between you both. You're not alone.”

― Marilyn Monroe

Losing Battle

As we all have lived our life's we do have those battles that we continue to struggle with. These battles could be in our personal live, work related, love life and so it does continue.

So for me having the Battle with Multiple Sclerosis has been my biggest losing battle to date, as every day is a blessing but also a challenge. As every day is a blessing and it is great to spend time with friends and family.But then there is the battle that is always with you and the fun part of the battle is that it changes from day to day.

The one day it could by that I am having Optic Neuritis  and my eyes are really painful and there is nothing to do just let it pass by. The next day could be walking down stairs and losing the feeling and balance in my legs. Then it could be a day where you have coffee with a friend and my hands shake so that is can't open the sugar. Then the days where I realise that the feeling in  my hands are getting less and less.

But I have also realised that excepting that this battle is a losing battle and making peace with what will and is happing to me is all part of a bigger plan. Also have knowing that I have no idea what is this bigger plan does bring peace to me.

So I hope that all of us that have Losing Battles can find peace that point of Equilibrium (my favourite word) and really live our life to the full.

Some of the greatest battles will be fought within the silent chambers of your own soul.

Ezra Taft Benson

Treadmill

So in general I have been writing about life,  love and peace and my favourite Equilibrium but today it is about me and Treadmill and MS.

So this started on Saturday Evening after a unbelievable birthday bash for a close friend of mine. So the short story is that I was accompanied by a most unbelievable friend that have been with me through the darkest days of my MS journey.

So as the night carried on it started a relapse in my legs,  she was there to make sure that I was never embarrassed by my weakness. When we left she had full faith when I said I was fine in driving the car.  She never made it uncomfortable for me.

It is during times like this that in know I am blessed with my friends that respect me.

I now know that I will be submitted to hospital shortly to assist with this.

Walking on the Treadmill today at gym and focusing on getting one foot in front of the next made me feel alive again.  That the Universe does give us our own Equilibrium we need to just accept it.

Listening to the following it was view that it was fine to accept that we need to move forward with all in our life.

Passenger -  Let her go

With life as a whole from love to pain.