Showing posts with label Journey. Show all posts
Showing posts with label Journey. Show all posts

Monday, April 6, 2026

You haven't seen the last of me (Cher written by Diane Warren}

 Cher’s power ballad "You Haven’t Seen the Last of Me" (written by Diane Warren) is often celebrated as a resilience anthem. When applied to the experience of living with an invisible terminal illness, the lyrics shift from a general story of professional comeback to a profound statement on bodily autonomy, identity, and the defiance of a prognosis.

Here is how the themes of the song relate to the journey of those navigating life with an invisible terminal illness:

1. The Fight Against "Premature Erasure"

One of the most painful aspects of a terminal diagnosis is the way society often begins to mourn the person while they are still present. The title line, "You haven't seen the last of me," serves as a reclamation of existence.

  • The Narrative Shift: For someone with a terminal illness, the world might start treating them as a "patient" first and a person second.

  • The Song’s Connection: The lyrics act as a refusal to be written off. It emphasizes that despite a diagnosis that suggests an ending, the person is still actively living, contributing, and asserting their presence.

2. The Burden of the "Invisible" Struggle

Because invisible illnesses don’t always manifest in ways that are obvious to others (like hair loss or using a wheelchair), the battle is often fought in private.

  • "I've been knocked down, I've been shaken": This line mirrors the internal physical and emotional toll that others cannot see.

  • The Mask of Wellness: People with invisible terminal illnesses often look "fine" on the outside while managing significant pain or organ failure on the inside. The song’s intensity reflects the sheer amount of energy required to "stand my ground" when the body is failing internally.

3. Resilience as a Choice, Not a Cure

In the context of terminal illness, "winning" isn't defined by recovery, but by how one chooses to spend their remaining time.

  • Defying the Timeline: The lyrics "There's no way that I'm giving up" don't necessarily mean fighting for a cure that doesn't exist; rather, they represent a refusal to let the illness take their spirit before it takes their body.

  • Agency: The song is a declaration of agency. It shifts the power from the "clouds" or the "darkness" (the illness) back to the individual. It says that while the illness may have the final word eventually, it does not have the final word today.

4. The "Broken" vs. The "Unbroken"

The song acknowledges vulnerability without surrendering to it:

"Feeling like my heart's been broken / I'm flattened on the ground."

This reflects the reality of a terminal diagnosis—the moments of total exhaustion and grief. However, the song doesn't stay on the ground. It transitions into a build-up of strength. For many in the terminal community, this represents the "Cycle of Resilience":

  • Acknowledge the damage: Admitting the illness is hard and life-altering.

  • Gathering the fragments: Finding the strength to continue for another day, another milestone, or another memory.

5. Leaving a Legacy

The phrase "You haven't seen the last of me" also carries a meaning of legacy. Even when the physical presence is gone, the impact, the love, and the "echo" of that person remain. It is a promise that their story does not end with a medical chart but continues through the people and the work they leave behind.


The song resonates so deeply because it validates that strength isn't the absence of pain or the absence of an ending—it is the decision to remain visible and vibrant for as long as possible.


Cher




Wednesday, June 29, 2022

Just Need to return to excepting

 Good day all,

After a long period of silence I am back as it has taken me some time to get myself in the correct mind space.

I still Remember posting the post about Inner Peace and after tests on Monday this was a clear message to myself. I need Inner peace.

In the words of my specialist Gerrie you have been Diagnosed with MS for over 10 years and you will get weaker, things will fall, you will walk into walls and the pain will continue. But I need to decide in my headspace if it will affect me, or change me. 

As we live our lives we as people have a negative outlook at our lives and what we have. After traveling around South Africa and seeing places and meeting people that I never thought of meeting. You have your hours and days of going back in your past.

Starting at the place that I experienced the most sadness, confused as ever before,  uncertainty and the sense of loss. As we were standing next to the grave and looking at the candle burning in the wind,  the words of Sir Elton John Runs through your head Candle in the wind the version that was played for Princess Diana just few weeks after Gerda.

http://www.youtube.com/watch?v=IRL5g9ajgqQ&feature=youtube_gdata_player

Thinking about that time I still remember a good friend of Gerda saying that at least they will both be in good company.

The moment of "MAKE PEACE AND LIVE IN LOVE " Is born!

We as people need to make peace. The death Of a loved one, the loss of loved ones, death of a child, and Severe or terminal illness, we need to make peace to really live in love.

PEACE IS ABOUT
People - Starting with me myself and I
Emotions - Aceptance, Regret and forgiveness
Action - Reaching out and embracing
Commitment - people love, and unconditional love
Energy - Positive Energy

It's in times like these that you become quite and humbled with what we have.
As we live our lives we all get challenged with OPPORTUNITIES. We have the choice what to do with this what we want to . So we can hide it,  we can ignore it or we can work with it. But the choice is our own.  I have learned that the universe will always give us chance to make PEACE with these opportunities. It has taken me years to realise that we need to live in love, as the world can only be a better place if we are surrounded by love.

But love can only be there if you are at total PEACE with yourselve and all that is around you,  the people and the individual challenges.

As a South African I have been given opportunities to learn,  but as I look back I realised that I still need to learn from all the new and old opportunities that I am surrounded with.

So I feel now that I am learning about making peace and Living in love, life is just getting better.

We as people can overcome everything if we have peace in our heart and truly live in love.

Sunday, September 9, 2012

Chemotherapy for MS



As part of my journey I decided to take the alternate route to treatment for my Multiple Sclerosis. This was a decision that was taken between my Neurologist and I. We just had a discussion around 18 months ago that the traditional treatment of MS was not going to help me.

I had faith that there was to be an alternate route to having all the side effects from medication day in and day out. As I wanted to have a normal life as far as is possible with the situation I am in. So we decided that we will start Chemotherapy. The solution was to have Campath treatment once a year for three years. As this is an approved treatment for slowing down the breakdown of the Myelin sleeve in the brain.

But as this is still in the early days of the drug to be used the Medical does not pay, I was blessed as last year the company I work for paid all the expenses. This year I was blessed that I received the funds for this from alternate support.

So the question is always does it help? is there an improvement? Well honestly there are a number of answers to this:
  • No as I still really have crappy days where all is not well. (But that normally shocks the people so not the correct answer).
  • Yes as I do not have the side effects from the other Medication. (But does not answer the question)
  • No as I still have MS. (Also not the correct answer).
  • Well I need to wait and see what the future brings. ( Such a non answer responds)


But maybe the correct answer is:

I have taken this route and I have faith that this is the correct route for the people close to me and me currently. And that I will walk (maybe not that straight or easy) this route. I also have put my trust in the people close to me to support me during this part of the journey. I have also made peace that I will day by day feel different and have different experiences but that is also my journey that I have chosen.


Then the other Question is: How do you feel during the treatment?
  • Cold fever spells during the treatment.
  • Injection soars
  • Rash like reaction all over the body
  • Itching


This is just for the week of treatment and week after then all is back to the normal MS Symptoms like:
  • visual disturbances,
  • limb weakness,
  • muscle spasms,
  • loss of sensation, speech impediment, tremors, or dizziness,
  • depression,
  • paranoia,
  • Uncontrollable urge to laugh and weep.


So in short this is my journey currently with Chemotherapy and MS and I do believe that it is all in the Mind and that we will continue to have the fight to overcome MS with my loved ones by my side.

“My body could stand the crutches but my mind couldn't stand the sideline.”
Michael Jordan